Wow im in big time pain......

[The Great One]

Man my life over the past 3 weeks has taken a huge turn for the worse. Ever since I was a little kid, I had psoriasis. For those who dont know what that is, its when the skin cells produce at a faster rate then normal leaving red scales on your body. For anyone that has it knows it can be a pretty horrible thing to have to live with.

Anyways, I have been taking alot of different medication for it, most would clear it up for awhile and then not work anymore. There has been a new type of medication out there called biologics which is basically injections you give yourself once or twice a week. I have always been hessitant to take them because of the serious side effects but about two months ago I finally decided to do it. The doctor put me on a drug called Raptiva. It has clear me up quite a bit but I woke up one morning a couple of weeks ago and notice I had some back issues. Then other parts of my body has been hurting. The doctor says now that I got arthritis. So on top of psoriasis, now I got arthritis. I cant move without hurting. I even have it in my jaw which kills me to chew and eat basically anything.

The good news is that jaw arthritis normally goes away within 2-3 months even without taking anything. I just hope all the arthritis goes away cause I never been in so much pain my entire life. :frown:

[da og blazed]

ahh that sucks big time

[latino bone]

wow....Might not mean much, but good luck.....

[StrateJacket©]

sorry to hear man...really hope you feel better...

take care...

[Floppy]

i know good friends w/ psoriasis


keep strong


i dont think its ugly at all :)

[The Great One]

wow....Might not mean much, but good luck.....

It means alot more then you think.......thanks :biggrin:

[The Great One]

i know good friends w/ psoriasis


keep strong


i dont think its ugly at all :)

Its the arthritis thats the problem........especially with the jaw. The psoriasis ive had for 24 years.......I know how to live with that :)

[Floppy]

u need to ask for strong painkillers so u can eat!!


morphine spray would work

[DAANSWER]

damn i felt bad just reading it. hope you get better. you should go see a specialist on it. may be they can provide you with some better medications.

[The Great One]

I think the more frustrating thing with this is you really learn about people in your life. Whats been the hardest on me isnt the psoriasis, isnt the arthritis, but the fact that people who you thought were important in your life, dont seem to care. Yet, there's ppl on a bone board some of whom i never even have talked to that show more concern.......its amazing. I debated posting this. Normally when im in pain, I shy away from telling ppl about it. I just suck it up and pretend nothing wrong. But as older as im getting, I realize its not wrong to admit when your feeling down, when your in pain. And u know what.......this is what i needed the most. Just some support is all. Thanks everyone :biggrin:

I guess its true what they say..........you can learn alot bout friends and family.....when things go great, everyone is around.......when things are down.......see who sticks with you.....for they are the true friends and true ppl that care about you.

[Andy Jay]

Word..I've never experienced anything like that..Good luck wit all dat..

[ShyLoVe*]

oh no!! Arthritis! I hope it goes away John! Have you somehow changed your diet or taking anything for the arthritis? I found out I got Dermatitis the other day, it got real bad on Friday/Saturday, but the creams he gave me have been working wonders!

I think the more frustrating thing with this is you really learn about people in your life. Whats been the hardest on me isnt the psoriasis, isnt the arthritis, but the fact that people who you thought were important in your life, dont seem to care. Yet, there's ppl on a bone board some of whom i never even have talked to that show more concern.......its amazing. I debated posting this. Normally when im in pain, I shy away from telling ppl about it. I just suck it up and pretend nothing wrong. But as older as im getting, I realize its not wrong to admit when your feeling down, when your in pain. And u know what.......this is what i needed the most. Just some support is all. Thanks everyone :biggrin:

I guess its true what they say..........you can learn alot bout friends and family.....when things go great, everyone is around.......when things are down.......see who sticks with you.....for they are the true friends and true ppl that care about you.

Yeah.. I know what you mean. But you know, sometimes people - family especially, partners, sometimes aren't sure what to do. Like, when my Mum had high blood pressure, I was so lucky my Grandma was around to stay with her, I was SOOOOOOOOOOOOO scared to even comfort her! I HATED seeing her in pain like that. She was so bad we had to get the ambulance to come get her! We went to see her in hospital and I kept crying, I didn't want to see her like that! But my Mum knows I love her.

She probably does care, she does the needle for you doesn't she? If she didn't she'd tell you to learn to do it yourself. I dunno, that was a comment without much information, you need to talk to me!

I hope you get better soon! :biggrin:

[The Great One]

oh no!! Arthritis! I hope it goes away John! Have you somehow changed your diet or taking anything for the arthritis? I found out I got Dermatitis the other day, it got real bad on Friday/Saturday, but the creams he gave me have been working wonders!



Yeah.. I know what you mean. But you know, sometimes people - family especially, partners, sometimes aren't sure what to do. Like, when my Mum had high blood pressure, I was so lucky my Grandma was around to stay with her, I was SOOOOOOOOOOOOO scared to even comfort her! I HATED seeing her in pain like that. She was so bad we had to get the ambulance to come get her! We went to see her in hospital and I kept crying, I didn't want to see her like that! But my Mum knows I love her.

She probably does care, she does the needle for you doesn't she? If she didn't she'd tell you to learn to do it yourself. I dunno, that was a comment without much information, you need to talk to me!

I hope you get better soon! :biggrin:

Actually when I wrote that I wasnt just referring to her, but sadly everyone, even my doctor. I mean I went in friday to switch meds and i was asking questions and it was like he was in a rush to get outta there. Its been everyone. No one has given me any support, except here. Its amazing. I just want someone to say things will be alright or that they will be there for me, is that so hard?

Yeah she does the needle, BUT she its like she's only concerned half the time. Like she'll ask and stuff but at the same time.....ill wake up......back would be hurting like hell.....and that afternoon she'll ask me to take our tv from upstairs and carry it downstairs cause we giving lexi our tv. And im sitting there thinking.........she just doesnt get it.......maybe because im not the whiny type, she dont know how much pain im in..........but then again she should........she sees the tears in my eyes.

Sad thing is..........i really believe the Raptiva was actually starting to work on my psoriasis. Parts of my body have cleared. BUT if its at the cost of arthritis, then no. Next month im going on Humira (another injection).....this actually is for psoriasis and arthritis. Its kinda weird one medicine heals psoriasis and causes arthritis but Humira has the opposte effect on arthritis........so hopefully once im on that, arthritis and psoriasis should disappear.

[ShyLoVe*]

aren't there any natural ways of treating psoriasis? I thought I had psoriasis but it's dermatitis!

yeah I understand you want support/comfort, it's unfortunate when even the real life people won't be like "hey I see you're upset, what's wrong." hhmm, that's a bit... rude?... you got an aching back and she gets you to carry the tv down =/ I'm sick of doctors these days, always rushing me when I know there is something wrong with me! :mad: and then I get a half assed consultation. Once I had a problem with my legs, they were all swollen and I couldn't even walk properly! the doctor didnt even LOOK at my legs! :mad: that still annoys me, to this day.

[The Great One]

There is no cure. Pretty much drugs will keep it under control. maybe even clear it completely but then your body becomes immune and you must switch.

Usually the medications go in this order. Topical steriods (creams, ointments) stuff like that, UV Light treatment, and Injections. There's also pills you can take but the side effects dont even make them worth it in my opinion. Mild cases........usually the dermatologist will give u a cream or ointment. Thats what I had the majority of my life. Some worked better then others, but most always my body would become immune and wouldnt work anymore. UV light treatments.....you go once a week and they put you in this thing.......it helps because usually the sun is the best thing for psoriasis. But what happened with me is I got burned doing it and I swore i'd never do that again. So now im up to biologics or whatever its called. The thing with this is........while the other drugs work on the outside to try and control it, the injections actually prevent it from starting up. I definitely think that someday when a cure is found, it will have to be this way.

So thats kinda where I am at right now with this. I will say the arthritis is horrible......worse then psoriasis........i can live with psoriasis....this i dunno.....especially the jaw.....omg it hurts to eat begen.

What blows my mind is..........its everyone. I was on the phone with mom the other day and I mentioned it and it was like ok john i gotta go bye........im like damn. Does anyone care lol

[latino bone]

wow, I just did some research on artharitis and it seems horrible....
I got a question for The One, but it might be way too personal.
Do you feel like....death might be better?
I dont mean it in an offensive way. umm....sorry.

[The Great One]

Nah. Because arthritis will go away eventually. Besides, if its just a side effect of the Raptiva, then im certain once I stop, it should go away.......i hope anyways

Even if it doesnt.......I dont think that way. There's alot I wanna do before I die lol.

[ShyLoVe*]

There is no cure. Pretty much drugs will keep it under control. maybe even clear it completely but then your body becomes immune and you must switch.

Usually the medications go in this order. Topical steriods (creams, ointments) stuff like that, UV Light treatment, and Injections. There's also pills you can take but the side effects dont even make them worth it in my opinion. Mild cases........usually the dermatologist will give u a cream or ointment. Thats what I had the majority of my life. Some worked better then others, but most always my body would become immune and wouldnt work anymore. UV light treatments.....you go once a week and they put you in this thing.......it helps because usually the sun is the best thing for psoriasis. But what happened with me is I got burned doing it and I swore i'd never do that again. So now im up to biologics or whatever its called. The thing with this is........while the other drugs work on the outside to try and control it, the injections actually prevent it from starting up. I definitely think that someday when a cure is found, it will have to be this way.

So thats kinda where I am at right now with this. I will say the arthritis is horrible......worse then psoriasis........i can live with psoriasis....this i dunno.....especially the jaw.....omg it hurts to eat begen.

What blows my mind is..........its everyone. I was on the phone with mom the other day and I mentioned it and it was like ok john i gotta go bye........im like damn. Does anyone care lol
:frown:

[MR.SAWEDOFFLEATHAFACE]

Sucks big time. Hope the pain doesn't stick. Goodluck

[atiba]

Sorry to hear that,hope sh*t gets better.Ur moms prob has trouble dealin wit the sit i doubt its dat she doesnt care.Dey aint much i can say but sorry/keep ur head up.

[The Great One]

Thanks. The doctor did say that if the arthritis is a side effect of Raptiva (which im sure it is) then when it leaves my system ( couple weeks he said), the arthritis should go away. Plus he's putting me Humira for my psoriasis which also helps arthritis......so im just trying to get through these next couple of weeks.

[shanebone]

good luck man, hope you feel better! yeah man i always get headaches, they finally think it has somethimg to do with my jaw, its called tmj! anways get better!

[sawedoffthugsta]

damn dawg,shit sux but ya gotta go on with ur daily shit,ya dig? dont let it get u down,u got peeps here on the board n ppl in ur life,if ur mom didn't care she wouldn't do shit 4 ya,she is jus tryin 2 stay strong 4 u dawg,thats how the mother works lol,but I hope u get better dawg,I have arthritis in my family,its hereditary(dunno how 2 spell dat shit) and everyone in my family has had it so far,I have back trouble cuz i was fuckin around as a kid n i fell outta big ass tree n fucked up my back,I know that aint gonna help me get outta arthritis but I smoke a lil reefer 2 get shit off my mind n reduces my amount of stress,makes me a way better person 2,If I'm without a while 4 too long my old attitude comes back n I'm really mean n shit wen ppl get me pissed but I been like dat b4 i smoked,dats why i smoke,4 me and other around me. but man hope u feel better dawg and god is with ya thru it all,no doubt,If u feel down,get a hold of god n shit,it makes me feel better knowin I aint gotta worry bout shit wen u got a mutual homie lol

Peace

[Kimo]

arthritis in not curable but since its a side effect i guess your's will
its osteoarthritis right, not rheumatoid arthritis? (i think you said it goes away)
well sorry to hear about your skin problem
i have my own (serious serious acne/scars)
im going to have to do various dermabrasion therapies for it

[The Great One]

good luck man, hope you feel better! yeah man i always get headaches, they finally think it has somethimg to do with my jaw, its called tmj! anways get better!


Yeah TMJ.....i think thats what i have. Then again im not really sure if its just arthritis in the jaw or TMJ......i know arthritis can cause TMJ tho so i dunno. But TMJ goes away eventually from what i read.

[The Great One]

arthritis in not curable but since its a side effect i guess your's will
its osteoarthritis right, not rheumatoid arthritis? (i think you said it goes away)
well sorry to hear about your skin problem
i have my own (serious serious acne/scars)
im going to have to do various dermabrasion therapies for it

See thats another thing........im not sure what type it is. It can be RA, but since I got psoriasis it can also be PA (psoriatic arthritis). I know its not curable thats why im hoping to god that its just because i was on raptiva and once it gets outta my system ill be ok. Plus the Humira should help it once i start it. I been taking tylenol and aleve and that seems to help somewhat. I dunno......i guess im just gonna have to wait a few weeks and see if it goes away or not.....i just hope it does. Im only 24 and im walking around like im 84.

[K.Battlezone]

What I tell you bout THAT GIRL :cesar:

homie you awwready know just pm me or Begen and we'll help you out..

its funny us three are always talking to each other.. cept begen she hates me :cry:

[The Great One]

Im not sure anyone can help me out. Im just hoping one day the pain will go away. :)

[K.Battlezone]

smoke some bud

hahahha nah i'm just kiddin

drink something.. my folks have this um.. bottle holder deal where they have alot of bottles. when i feel like crap or whatever i just reach in .. grab something go online , find out what i can mix it with and make me a badass drink

tequila + coca cola + lime = my fav drink at the moment

add salt thanks

[atiba]

^^^Ganja is the healin of the nation.Good to hear that all the pain maybe temporary.Try and maintain till then.

[The Great One]

What I tell you bout THAT GIRL :cesar:

homie you awwready know just pm me or Begen and we'll help you out..

its funny us three are always talking to each other.. cept begen she hates me :cry:

I think that im beginning to understand why it seems like certain people dont care.

First off, if you never had a particular disease before, you cant possibly know how painful the disease is. I mean before this, i had heard of arthritis but I never thought it was anything to make a big deal about. I always thought, well just take some advil or whatever and it be ok. And now that I got it, I couldnt have been any more wrong. Its more painful then I could ever imagine. Its the same with all diseases tho, if u dont have it, its hard for someone else to know just how much pain your experiencing. Especially with me, I have had these issues for weeks now (not as bad but i still saw the effects awhile ago). I never said anything to anyone.....not mom, not angie not anyone. I just assumed it go away. And then when I did say something was wrong, I didnt go on and on and on about it.....thats just not how I am. So in their defense, I gotta say maybe they didnt realized the pain, because i wasnt acting like i was in major pain.

Second, if you dont know what the disease is, you cant understand how painful is it. 4 million ppl in america have this, yet im shocked at the many people who have never even heard of it or have misinterpretations about what it really is. See......if someone says they have aids or cancer, u know exactly what that is. You might not know the full pain, but u know what it is. With psoriasis.....u can say u got it, but since people arent very knowledgeable about it.....they cant possibily know how painful it is.

So thats why i think it just "seems" like no one cares.

PS Btw begen dont hate you lol. Know whats weird......i dont really go on aim or msn a whole lot but when i do im usually talking to either you or her........yet i dont think us three ever talked in one thing at the same time. I guess cause we are all on at different times.

[shanebone]

Yeah TMJ.....i think thats what i have. Then again im not really sure if its just arthritis in the jaw or TMJ......i know arthritis can cause TMJ tho so i dunno. But TMJ goes away eventually from what i read.
ok cool, yeah i have headaches and the pain is around my ear. and i can reallty easily move my jaw around, thats my doctors last hope on why i get headaches. i hope i have it and they can fix it. it sux i always have headaches!

[The Great One]

Do you have it right now? How long have you had it? The good news is......it is curable. You'll get better soon.

[ShyLoVe*]

CESAR I DON'T HATE YOU!

Yeah, we are hardly ever on the same time anymore :-( John goes on when I have to go to sleep and he's gotta work

You Cesar I dunno bout you, usually after you've been out, so that's late at night for me too

Stay strong John! Don't keep your pain in though, let her know how bad it is

[shanebone]

Do you have it right now? How long have you had it? The good news is......it is curable. You'll get better soon.
i get a check up in late march there backed up till then! i hope they find out whats wrong, it sucks having a headache like everyday! i have headaches since i was like 10 or so
/cries

[???????]

One thing that i've learned in the past couple years is that health is much more important than most things. Even more so than money. To me, the one thing more important than health, is having love and support from family and friends. I hope you feel better soon.

[The Great One]

i get a check up in late march there backed up till then! i hope they find out whats wrong, it sucks having a headache like everyday! i have headaches since i was like 10 or so
/cries

Thats really odd because everything I read about it says that it will most likely go away in 1 to 3 months even without medication.

[shanebone]

she gave me packet on it, i will have to read more into it i guess! if ya need any info on it just hit me up!

[The Great One]

I keep hearing once the Raptiva leaves my system, ill be ok.

You should be alright as well. Im sure the doctor will give ya something for it that will cure it.

Luckily i havent had headaches yet, but i have had a couple toothaches.

You were saying you can move your jaw around easily? You may not have TMJ......I dunno. I guess you'll find out once u get it checked out.

[Kimo]

See thats another thing........im not sure what type it is. It can be RA, but since I got psoriasis it can also be PA (psoriatic arthritis).
do you feel weakness/pain all day long or just in the mornings?

[The Great One]

All day long......although its much worse in the morning......then I usually take an alleve and some of the pain goes away.

[Gravity]

Man my life over the past 3 weeks has taken a huge turn for the worse. Ever since I was a little kid, I had psoriasis. For those who dont know what that is, its when the skin cells produce at a faster rate then normal leaving red scales on your body. For anyone that has it knows it can be a pretty horrible thing to have to live with.

Anyways, I have been taking alot of different medication for it, most would clear it up for awhile and then not work anymore. There has been a new type of medication out there called biologics which is basically injections you give yourself once or twice a week. I have always been hessitant to take them because of the serious side effects but about two months ago I finally decided to do it. The doctor put me on a drug called Raptiva. It has clear me up quite a bit but I woke up one morning a couple of weeks ago and notice I had some back issues. Then other parts of my body has been hurting. The doctor says now that I got arthritis. So on top of psoriasis, now I got arthritis. I cant move without hurting. I even have it in my jaw which kills me to chew and eat basically anything.

The good news is that jaw arthritis normally goes away within 2-3 months even without taking anything. I just hope all the arthritis goes away cause I never been in so much pain my entire life. :frown:

I can't remember off the top of my head what's supposed to be good for arthritis other than copper and I believe fish oil. But I've never dealt with it to know how effective either of them are. I'm not sure about having it in the jaw though. :frown: I have heard as far as the hands and such doing exercises can help.... like the baoding balls and needle work (quilting and such).

My mom developed psoriasis out of the blue about 2 or 3 years ago. Well into her 50s, never had a problem like that before, and they can't seem to find anything to work for her. It's on the bottom of her feet an in the palms of her hands. If you've had it for a while I'm sure you know not to use perfumed soaps or lotions, and you might want to be careful about your laundry detergent as well (if you're not already). Couldn't hurt to check your diet as well. Personally I think hers came up when she started eating pork again (but I'm anti-pork anyways). My mom has done light treatments, all kinds of creams and pills and nothing really did the trick. Her hands and feet are pretty much cleared up completely. Her hands have been completely fine for a while now, but every now and then it'll come back in spots on the bottom of her feet.

Guess what she's been using.... PURE SHEA BUTTER. Go to your local african guys and get some. You should be able to find it on-line but it might cost more. It's rather oily, and hard to spread (unless you want to heat it up first). Takes a little practice to make sure you're not using too much, but it's the only thing that's helped my mom. I can't remember how long it took before she noticed a difference, but it worked and it's continuing to work. I believe emu oil is also supposed to be good for it, but she's never tried it. She never tried pure cocoa butter, so I don't know if it would work as well. There was this kit that someone got for her, a skin care it. It was very expensive and it used tea tree oil. She actually saw an improvement when she used it, but I can't remember how long she used it to know if it just wasn't long enough to completely clear it up. A lady from her job that had psoriasis bought it for her to try.

They say (as I'm sure you know) that they don't know what causes it, but diet and stress can play a role in it. Might be something to look into, if you haven't already. I'll find out the name of that system she used and post it here for you just incase you're interested. But I say definately pick up some shea butter. I will cost you about 5 to 10 dollars per pound. Don't pay more than that for it, unless you live in the boonies somewhere with no access.

I'm sorry you're not feeling so great though, and I do hope that you feel better.

*~Peace and Blessings~*

[The Great One]

Thanks :)

Yeah I realized with the arthritis I kinda have two options right now.......I can either just lay down all day when i come home from work (making it worse).......or I can exercise. Although exercise right now is kinda painful, im beginning to understand thats what i gottta do. I cant let this affect my life. Exercising will make the muscles around the joints stronger. I been stetching every chance I get (even at work which some ppl here must think im insane lol).

I never used shea butter before. I've always been using traditional methods mostly like creams and ointments........i did try the cocoa butter lotion tho and that seem to help at least keep the skin moist. One other thing i've noticed.....psoriasis may be triggered by allergies. I say this before I used to work in a park a couple of years ago and I would notice that it get alot worse whenever I was there. So I went to the doctor and sure enough......im allergic to grass and trees (kinda makes working at a park a bad place to be lol). I think I will definitely see about the shea butter and I too heard that the emu oil helps as well.

I also hear swimming in the Dead Sea helps greatly. But I just dont have the money for a trip like that right now lol.

[Gravity]

Thanks :)

Yeah I realized with the arthritis I kinda have two options right now.......I can either just lay down all day when i come home from work (making it worse).......or I can exercise. Although exercise right now is kinda painful, im beginning to understand thats what i gottta do. I cant let this affect my life. Exercising will make the muscles around the joints stronger. I been stetching every chance I get (even at work which some ppl here must think im insane lol).

I never used shea butter before. I've always been using traditional methods mostly like creams and ointments........i did try the cocoa butter lotion tho and that seem to help at least keep the skin moist. One other thing i've noticed.....psoriasis may be triggered by allergies. I say this before I used to work in a park a couple of years ago and I would notice that it get alot worse whenever I was there. So I went to the doctor and sure enough......im allergic to grass and trees (kinda makes working at a park a bad place to be lol). I think I will definitely see about the shea butter and I too heard that the emu oil helps as well.

I also hear swimming in the Dead Sea helps greatly. But I just dont have the money for a trip like that right now lol.

LOL.... I don't know about the dead sea, but you can actually buy dead sea salt. However, I don't recall hearing that it was good for psoriasis. Have you ever thought about an allergy test (if you haven't taken them already)? I'm not sure if your family doctor would do a food allergy test, but he/she might know where you could get one done. The strangest, or should I say slightest, things can cause allergic reactions.

Emu oil you should be able to find online (just shop around for prices first) or probably at whole foods. Tea tree oil, and products containing tea tree oil should also be available at whole foods. I'm not sure about the emu oil, but tea tree oil is very strong stuff! You might be better off find somethings already diluted to a safe measurement within another product. If I'm not mistaken tea tree oil can actually burn (like some other essential oils) if you use too much of it! So I would recommend speaking with your doctor about it before trying it. My mother does not remember the name of the stuff she used, but if I recall later on my own I'll let you know. She liked the products a lot though. I just asked her how her hands and feet have been and she said she started to notice a little peeling. I asked her if she has beed using the shea butter, and she said that she hasn't been using it everyday lately. This happened before when she slacked off. But it seems like as long as she's using it daily it's ok. But it's still no where as bad as it was before! I keep her stocked in shea butter. I'll usually get 2 pounds at a time because that way I'll get it for half the price at the place I go to, and it lasts a looong time. (Everything is cheaper in bulk.) Initially she was putting a nice coat of it on at night right before bed, and using a little bit of it thoughout the day if her hands began to feel dry. (Could be why her hands cleared up better than her feet.)

Well happy hunting sweetie! I hope they work for you! :-)

[The Great One]

http://www.baar.com They have a bunch of stuff for psoriasis.........they even got shea butter soap. Im thinkin bout trying some of those.